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Latest News

We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below.

25 Aug 2026

Our August 2026 newsletter is now available!

Theme for this issue is responses in our annual survey. We also highlight some new guides for Ehlers-Danlos Syndrome and Dysautonomia

8 Jul 2026

‘I feel trapped’: 29-year-old Wellington woman hasn’t left upstairs bedroom for four months

Paddy Gower Does Stuff: Woman hasn’t left upstairs bedroom for months

29 Jun 2026

Our June 2026 newsletter is now available!

Theme for this issue is Manual Vagus Nerve Stimulation.

24 Jun 2026

2026 Annual Survey – Open Now

Your feedback shapes what we do...

22 Jun 2026

Find Support After an ME/CFS or Long Covid Diagnosis in Canterbury and the West Coast

Being told you have Myalgic Encephalomyelitis (ME/CFS) or Long Covid can feel overwhelming and isolating.

12 Jun 2026

Announcing Winners of the 2026 Crash Wear Merch Design Competition

We are excited to announce the three winners of our 2026 Crash Wear Merch Design Competition.