Resources and Links Take your time going through this information list. Just read or visit the content that is of interest to you. We only share the best clinically accepted and verified guidelines and information for ME/CFS and Long Covid. Be aware that a lot of content online or in books is not evidence-based, and that more research is needed to fully understand the causes and best treatments for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. What helps one person, will not necessarily help someone else. Please refer to our ‘Living with ME/CFS ’ content for practical advice on pacing and supports that may make a difference to your wellbeing and quality of life. Click on the section headings below to expand and view the related links. For Health Professionals Up Refer to your HealthPathways for regional clinical advice for ME/CFS. The excellent 96 page 'Clinical Care Guide: Managing ME/CFS, Long COVID, & IACCs' from Bateman Horne Centre , USA, who are leading international ME/CFS clinicians. NICE in the UK published updated guidelines for ME/CFS in 2021. CDC in the USA maintains advice and handouts about ME/CFS. Mayo Clinic in the USA have also published guidance for ME/CFS – Consensus Recommendations and Concise Review for Clinicians . Dialogues for a neglected illness project (UK) has produced a series of 15 minute videos covering different aspects of ME/CFS including Post-Exertional Malaise and the issues involved that have lead to poor care and insufficient research. M.E. Awareness NZ has curated a list of information and resources for health professionals, including Continuing Medical Education that is endorsed by RNZCGP. For Patients and Whānau Up Subscribe to our channel! Te Whatu Ora has provided online information about ME/CFS on HealthInfo. TAKE ME THERE The ‘What is ME/CFS? ’ video from the Bateman Horne Center (ME/CFS specialist centre), USA, is under 6 minutes long and provides a basic introduction into the IOM 2015 diagnostic criteria for ME/CFS. It is intended as education for medical providers but is also a good introduction for patients and the public. M.E. Awareness NZ has curated a list of resources for people affected by ME/CFS TAKE ME THERE Join ANZMES , the national advisory and support organisation for ME/CFS in New Zealand, to support their advocacy efforts. TAKE ME THERE The Unrest film tells the story of Jennifer Brea and others and what ME/CFS looks like behind the scenes. It also includes a history of the disease including contributions from Dr Nancy Klimas and Dr Ron Davis. Our Youtube channel has a range of recorded presentations on a variety of topics from past education meetings. E.g. Gut Health, Orthostatic Intolerance. TAKE ME THERE For Long COVID Up The Long Covid Support Tool , published by ME Support – NZ, is an excellent series of videos and resources. Useful for people with ME/CFS as well. TAKE ME THERE Long Covid Support Aotearoa provides information and community. TAKE ME THERE Self-guided online courses for Long COVID recovery developed by physiotherapists at Breathability, New Zealand. TAKE ME THERE Information from the Long Covid Physio , an international association. TAKE ME THERE 'What is Long COVID? (and ME/CFS?)' from the ME Association UK. TAKE ME THERE For Parents Up Join the private Facebook group NZ Carers for Young People with ME and related illnesses TAKE ME THERE Listening to Families , who are based in Christchurch, have produced a series of short videos designed to support and answer questions for families exploring a diagnosis of ME/CFS and management for their child or teenager. 80 minutes in total, with 19 videos from 1 to 8 minutes long, covering a range of relevant topics. TAKE ME THERE For Young People Up ME Support, based in Auckland, facilitate a free online Discord community for teens living with ME/CFS. Our nurses can refer you. Connecting online with others Up ME/CFS is a chronic complex condition that makes daily life difficult and causes social isolation. Online peer support groups can be helpful for people with ME/CFS as they can connect people who share similar experiences. People can come together online to socialise, share information and offer support to one another. It is okay to take a break from them as well, and shift our focus to other things. New Zealand based online forums: Join our online peer support community in a private Facebook group for people affected by ME/CFS or related illness who live in Canterbury or the West Coast of New Zealand (or elsewhere in the South Island). Join the friendly Canterbury Fibromyalgia and CFS/ME Group to connect and find out about informal local social catchups. Join the national online community facilitated by ME Support – NZ, who are based in Auckland. Other groups you may wish to check out: NZ M.E/CFS Catch ups for a holistic approach; For parents, join NZCare4ME for carers of young people with ME/CFS and other similar chronic illnesses (such as POTS, MCAD, EDS, and Fibromyalgia). For young people, join a Facebook community for NZ Teens/Early 20's with ME/CFS and Related Illnesses, or CFS / Fibro: Young Adults Group for people aged 18 to 35 (not very active at present). For young people (aged 12-20) living with any illness or disability in NZ and Australia, and their siblings, the Livewire community provides safe social connection and positive distraction. If you are severely unwell with ME/CFS, join the NZ Severe Facebook community. For long COVID, join the Long Covid Support Aotearoa and Long Covid Kids New Zealand Facebook communities. For fibromyalgia, join Fibromyalgia NZ Support and the Fibromyalgia & CFS NZ Support Facebook communities. For Ehlers-Dahlos Syndrome, join the national Loosely speaking - Ehlers Danlos NZ support group, the South Island support hub , or other affinity support groups . For Mast Cell Activation Syndrome, join Mast Cell NZ . International online forums: Phoenix Rising is the largest and oldest international online forum for complex chronic illnesses such as ME/CFS, fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases. It uses XenForo community platform, rather than Facebook. Science for ME focuses on scientific discussion but is also a useful place for support and advocacy. There are public and member-only areas within the forum. It uses the XenForo community platform, rather than Facebook. #MEAction, a global movement fighting for recognition, education and research for people with ME/CFS, has several international affinity groups on Facebook for people, such as pregnancy and parenting, seniors, and caregivers. For teens and young adults up to mid 20's, check out the Teens with ME/CFS and Related Illnesses, and Teens With Chronic Illnesses Facebook communities. If you have severe ME/CFS, join the international online support group. For parents of young people with ME/CFS, join the large Parents of Kids & Teens with ME/CFS and Related Illnesses Facebook community. For parents of adults with ME/CFS, join Parents of adult children with ME/CFS Facebook community. For long COVID, join COVID-19 Long Haulers Support Facebook community, and search for others. Research Updates Up Good research is incredibly important for understanding ME/CFS. It informs everyone; those with ME/CFS, and also, whānau, health professionals, and more. It is important to consider the quality of research you may be reading. Reliable research is the result of accurate and ethical scientific methods being used throughout the entire process. Questions you can ask to help determine the reliability of research can include: Who is the focus; are there any conflicts of interest; Has the research paper been peer-reviewed; Does the study give unsupported conclusions. Wariness of media reports and caution when trying alternative treatments are also important to consider. Understand that all scientific research is biased by default, the scientists conducting them are people. Good research publications will detail design, methods, results, funding, and conflicts of interest for. For further personal review on scientific evidence and research, the Science Media Website has a useful article on scientific evidence: https://www.sciencemediacentre.co.nz/coveringscience/types-of-scientific-evidence/ Research Links: Health Rising blogs about ME/CFS, long COVID, and Fibromyalgia. These blog posts discuss key research in easy-to-understand language, and each article usually includes an overview in a gist panel. ME/CFS Science does analysis on ME/CFS research. Formerly known as ME/CFS Skeptic. Also hosts a companion website, ME/CFS Science and provides an annual review of important ME/CFS research. Science for ME is an open forum that discusses ME/CFS and most related research. There are also resources and other useful pieces of information. ME-pedia is a crowd-sourced encyclopaedia filled with research and history relating to ME/CFS. The Long Hauler Sunbeam is a monthly newsletter which discusses research, thoughts, and questions. ME Association provides updates about research both done by others and funded by the Ramsay Research Fund. They also publish a ME/CFS/PVFS Clinical & Research Guide (aka the 'Purple Book') which is available to purchase as an eBook. Simmaron Research publishes research on ME/CFS. Emerge Australia publishes research digests that share current ME/CFS and Long COVID research. The ME/CFS and Fibromyalgia Information Exchange Forum on CO-CURE . Join the subscription list for information about ME/CFS and Fibromyalgia. They also keep an archive of all former newsletters

Getting Diagnosed At this stage, there are no specific diagnostic tests available that can be done in a clinical setting to confirm ME/CFS. However, healthcare professionals can make a diagnosis by using the diagnostic criteria, excluding other possible conditions, and ensuring that post-exertional malaise (PEM) is present. VIEW THE DIAGNOSTIC CRITERIA Your doctor is likely to refer to the clinical advice for ME/CFS on the Health Pathways website provided by Te Whatu Ora | Health New Zealand and may: Ask about you and your family’s health history. Ask about anything you have tried that makes the symptoms better or worse. Suggest that you keep a diary of symptoms and activity. Carry out an examination to identify alternative underlying disorders. They may look for any weight changes, difficulty with self-care, and issues with heart rate and blood pressure when moving to an upright position, and also, check for lymphadenopathy, thyroid disease, cardiac or pulmonary disease, joint or connective tissue disease, and neurological issues such as myopathy and multiple sclerosis. Request baseline blood tests for CBC, CRP, ferritin, electrolytes, renal and liver function, calcium, magnesium, blood glucose/HbA1c, B12, vitamin D, thyroid function, coeliac antibodies. If your illness is post-viral, they may also test for Epstein-Barr virus, cytomegalovirus, and HIV. Depending on your symptoms, they may also test for immunoglobulins, antinuclear antibodies, rheumatoid titres, creatine kinase, and cortisol. Request an ECG and chest x-ray if you experience palpitations, chest pain or shortness of breath. Consider long COVID if your symptoms appear to have been triggered by COVID-19 infection. We have a lett e r that you can take to your GP to let them know about the new clinical guidelines for ME/CFS on the Health Pathways website. DOWNLOAD A LETTER FOR CANTERBURY GPS DOWNLOAD A LETTER FOR WEST COAST GPS Our Registered Nurse Service is available to support you when you are wondering if you have ME/CFS and are seeking a diagnosis. Our nurses work through the assessment process against the diagnostic criteria with you, and then, with your permission, can share the result with your GP. How we help For a comprehensive list of clinical primers and other resources for health professionals refer to: Link https://m.e.awareness.nz/resources-health-professionals/ PREVIOUS PAGE NEXT PAGE

Subscribe to our Newsletter Sign up to become a member to receive our bi-monthly newsletter. The newsletter includes information about managing and living with ME/CFS, latest research, our activities, plus more. BECOME A MEMBER VIEW OUR NEWSLETTERS Latest News We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below. 25 Aug 2026 Our August 2026 newsletter is now available! Theme for this issue is responses in our annual survey. We also highlight some new guides for Ehlers-Danlos Syndrome and Dysautonomia Read More 8 Jul 2026 ‘I feel trapped’: 29-year-old Wellington woman hasn’t left upstairs bedroom for four months Paddy Gower Does Stuff: Woman hasn’t left upstairs bedroom for months Read More 29 Jun 2026 Our June 2026 newsletter is now available! Theme for this issue is Manual Vagus Nerve Stimulation. Read More 24 Jun 2026 2026 Annual Survey – Open Now Your feedback shapes what we do... Read More 22 Jun 2026 Find Support After an ME/CFS or Long Covid Diagnosis in Canterbury and the West Coast Being told you have Myalgic Encephalomyelitis (ME/CFS) or Long Covid can feel overwhelming and isolating. Read More 12 Jun 2026 Announcing Winners of the 2026 Crash Wear Merch Design Competition We are excited to announce the three winners of our 2026 Crash Wear Merch Design Competition. Read More Load More

Feeling creative and got some extra spoons? Turn them into something that speaks for our community with our Crash Wear Design Competition. We’re looking for ME/CFS or Long Covid themed designs for our Crash Wear merch, something that captures the lived experience of ME/CFS and Long Covid. < Back The 2026 Crash Wear Design Competition 11 Apr 2026 Feeling creative and got some extra spoons? Turn them into something that speaks for our community with our Crash Wear Design Competition. We’re looking for ME/CFS or Long Covid themed designs for our Crash Wear merch, something that captures the lived experience of ME/CFS and Long Covid. Three winning designs will be featured on ME/CFS Canterbury “Crash wear” merchandise and the winners will receive one crash wear item of their choosing featuring their design. Entries close Saturday, 31st May 2026, and winners will be announced on Friday 12th June 2026. Check out the current Crash Wear range at https://mecfscanterbury.digitees.co.nz Conditions of Entry Eligibility: Entry is open to members, caregivers, and family/whānau of people living with ME/CFS or Long COVID in the Canterbury and West Coast regions. Entry Period: Entries open upon announcement and close at 11:59pm, 31 May 2026 (NZST) Number of Entries: You may submit as many designs as your energy allows, no pressure to overdo it. Original Work: All submissions must be the entrant’s original work and must not infringe on any copyright, trademark, or intellectual property rights. Design Requirements: Designs should reflect themes relevant to ME/CFS and/or Long COVID. Artwork must be suitable for printing on merchandise e.g. clothing, accessories. Colours do not need to be limited to the existing colour palette of our Crash Wear (blue and white). Final files may be requested in a high-resolution format if shortlisted. We will also accept draft entries from people who have a good idea but not the skills or tools to create high quality art. If your design is the winner, we can arrange for the artwork to be done. Use of Entries: ME/CFS Canterbury may display submitted designs (with credit) on social media for promotional purposes related to the competition, unless the entrant requests otherwise. Selection of Winners: Entries will be reviewed and three winning designs selected by a panel of ME/CFS Canterbury staff, volunteers, and members. W inners will be announced on Friday 12th June 2026 on https://www.mecfscanterbury.nz/news-1 and by email. Prize: The three winning designs will be featured on ME/CFS Canterbury “Crash wear” merchandise and the winners will receive one crash wear item of their choosing featuring their design. The item of clothing or accessory can be selected from the range available from Digitees. View the selection at https://www.digitees.co.nz/create. Artist Credit & Rights: Artists will be credited wherever reasonably possible. If your design is selected as a winner, the rights to the design are transferred to ME/CFS Canterbury for use in promotional, fundraising, and merchandising purposes. Content Guidelines: Designs must not include offensive, discriminatory, or inappropriate material. ME/CFS Canterbury reserves the right to exclude any entry that does not align with its values. Changes & Decisions: ME/CFS Canterbury reserves the right to amend these conditions or cancel the competition if necessary. All decisions are final, and no correspondence will be entered into. Submit Your Entry Submit here Feel free to email us on info@mecfscanterbury.nz if you have any questions. Previous Next

We are looking for another part time Registered Nurse < Back Registered Nurse Vacancy 23 Apr 2026 We are looking for another part time Registered Nurse We are looking for another part time #RegisteredNurse to join our small clinical team. Could you help us to make a difference for people with ME/CFS and long COVID? Or do you know someone who might? ____________________________ About #MECFS : ME/CFS is a serious long-term illness. People living with ME/CFS experience a fluctuating severity of symptoms and are severely impacted in the activities of daily living. Appropriate clinical support and guidance for self-management can improve symptoms and quality of life. ____________________________ About Us: ME/CFS Canterbury / West Coast Charitable Trust is a growing community health organisation and charity. We focus on improving the lives of people living with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome and #longCOVID and their whānau, by providing information, validation, clinical support, connection, practical support and advocacy. We also provide educational opportunities and guidance about ME/CFS for health professionals. We deliver our services in Canterbury and the West Coast of New Zealand. Visit our website www.mecfscanterbury.nz to find out more. ____________________________ For details about the vacancy: ✦ Ad on Seek - https://nz.seek.com/job/91628370 ✦ Closing Date: 8am Monday 11th May 2026 Previous Next

We are delighted to announce that physiotherapists who have access to the Allied Healthways website provided by the CDHB now have appropriate advice available in the PhysioFITT guidance for ME/CFS. < Back New guidance from CDHB for physiotherapists 25 Jun 2021 We are delighted to announce that physiotherapists who have access to the Allied Healthways website provided by the CDHB now have appropriate advice available in the PhysioFITT guidance for ME/CFS. We are grateful to the clinical editors from the Canterbury District Health Board who have worked with us recently to provide up-to-date guidance about ME/CFS for physiotherapists working with the PhysioFITT programme. This new guidance is available on the CDHB's Allied Healthways online platform, and will help health professionals to be aware of current understanding of this debilitating illness, and the need to move away from prior advice that is no longer recommended. Under the PhysioFITT program, physiotherapists assess the clinical context of the patient and deliver a tailored assessment and activity plan appropriate to their health condition(s). Key points made for ME/CFS clients: Avoid exercise tests that may trigger post-exertional malaise (PEM). Check for Orthostatic Intolerance. Graded Exercise Therapy (GET) is not recommended for ME/CFS. Exercise should be used for physical maintenance (core strength, bone density and enjoyment) and be at a level to avoid post-exertional malaise (PEM). If PEM is experienced frequently, consider reducing rather than increasing activity in order to improve overall wellbeing. It may be more helpful to focus on daily activities than formal exercise. Make #movementforlife safe for #MyalgicEncephalomyelitis #ChronicFatigueSyndrome Previous Next

The Mayo Clinic Proceedings publication has recently published a consensus recommendation article for ME/CFS written by the ME/CFS Clinician Coalition. It is exciting that another leading health care publication is sharing up-to-date evidence based information about ME/CFS. < Back Mayo Clinic releases new consensus clinical guidance for ME/CFS 4 Sept 2021 The Mayo Clinic Proceedings publication has recently published a consensus recommendation article for ME/CFS written by the ME/CFS Clinician Coalition. It is exciting that another leading health care publication is sharing up-to-date evidence based information about ME/CFS. The Mayo Clinic Proceedings publication is a premier peer-reviewed clinical journal for general and internal medicine, and is among the most widely read and highly cited scientific publications for physicians. The journal has recently published a consensus recommendation article "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management" by Lucinda Bateman et al (US ME/CFS Clinician Coalition). The lengthy article (14 pages + references) discusses diagnosis and management, and highlights: key biological impairments in ME/CFS. the need to identify/treat co-morbidities. why GET (Graded Exercise Therapy) is not recommended. the link to Long COVID. It is exciting that another leading health care publication is sharing up-to-date evidence based information about ME. Of note, this article cites research from exercise physiologist, Dr Lynette Hodges, Massey University, NZ. Author Dr. Lucinda Bateman notes, “There are many steps clinicians can take now to improve the health, function, and quality of life of people with ME/CFS, including those newly ill with ME/CFS following COVID-19. This guidance may also help Long COVID patients, even if they do not fully meet criteria for ME/CFS.” Please note that the medication section is based on the US environment, which has a large range of medications available and where clinicians are able to be more experimental with off-label prescriptions than in other countries such as NZ. For local guidance for NZ medical professionals, we recommend the NZ Doctor How to Treat: ME/CFS article. (Available https://m.e.awareness.nz/how-to-treat-mecfs .) Link: https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext Previous Next

Volunteer Outreach Services We have a growing team of wonderful volunteers in our Outreach Service who provide one-off or regular practical support for people affected by ME/CFS. Our kind volunteers help with tasks such as housework, dog-walking, gardening, friendly company, and technical support. This support can help clients to stabilise symptoms, manage obligations and domestic activities, and reduce isolation. We won’t always have a volunteer to match with you in your area, but if you let us know what your needs are, we can certainly try to find someone. All our volunteers have a clean result from a Police Check, are given information about ME/CFS, and sign confidentiality and other volunteer agreements. A quick note to set expectations of our Outreach Service... T here are some factors affecting the capacity of this service currently: It is coordinated by a part time volunteer, and sometimes the coordinator position itself is vacant. It takes time to onboard volunteers and then to match them with clients that need the help offered in the suburb needed. Volunteers do not always stay for long, as they may move onto employment or further study. However, please do put your name on the list if you are interested in this support. We can't guarantee we will find a volunteer for you, but it makes it possible if we know what your needs are. To access this service: To refer yourself to the Volunteer Outreach Service, sign up as a member and note on the form what help would be beneficial, and one of our team will be in touch. FILL OUT OUR MEMBERSHIP FORM CONTACT US If you are already a member, send us an email about the help you are needing.

Our Organisation MECFS Canterbury was originally established in 1985 as a society under the Incorporated Societies Act 1908. The society's goals were to support and assist people with ME/CFS in the management of this debilitating illness and with the aim of improving their quality of life. In 2024, our organisation moved to a Charitable Trust model. The society, M.E. /CFS Group (Canterbury) Inc, was wound up and all services, staff and assets were transferred to ME/CFS Canterbury / West Coast Charitable Trust. We continue to be registered as a charity under number CC32072. We currently trade under the names MECFS Canterbury and ME/CFS Canterbury / West Coast. We have grown over the years to become a professional community health and clinical service organisation, providing a range of services and supports for our community. Visit the How we help page to find out more. We serve people in the Canterbury - Waitaha and West Coast - Te Tai Poutini regions in the South Island - Te Waipounamu of Aotearoa New Zealand. These regions include thirteen District Councils. We also support students at the Southern Regional Health School, who may live in any region of the South Island. Our Strategic Plan For 2023-2028 Determine the cooperation opportunities and geographic range of our organisation Enhance the strength of our governance and organisational framework Reach, support and retain more clients and members Support our supporters: health professionals, funders, volunteers, and others Presentations to our AGMs Our Annual General Meetings are held in November of each year. These meetings provide us with an opportunity to share an overview of our service delivery and finances for the year, and to look towards the year ahead. We invite you to watch the videos of our presentation slides from past AGMs. Annual Performance Statements Our audited Financial and Service Statements provide a detailed view of our finances, outputs and activities. If this is your thing, here they are. 2023 STATEMENTS - Not yet audited 2022 STATEMENTS 2021 STATEMENTS

Connect with Us Join Us Online Community Social Media Want to help? We invite you to join us as a member to access our full range of services , to receive our news in your inbox, and to support our advocacy and education work. It is free* to become a member of MECFS Canterbury. (*We do welcome donations if that is an option for you) Please complete our membership form, either: Join online or Print PDF and post Join Us: Our Events: You are warmly invited to join us at our various events. We have regular group meetings that may have an educational, support or social focus for people affected by ME/CFS. We are also involved in hosting education events for health professionals. For information about our upcoming events, including our support and education meetings, please visit our event calendar. Check our Events Our online peer support groups are private Facebook groups that proivde an online community space for people living with ME/CFS and related conditions. They are a great place to connect, share experiences and information, and organise local social catchups. The South Island online Facebook group... The West Coast online Facebook group... Many of the people in our ME/CFS community live in isolation, with financial hardship, disability, and without appropriate support from the health and welfare systems. We need community-wide support to improve the quality of life of people affected by ME/CFS. There are a variety of ways that you can help or join our team to make a difference. Check out our list of ways to help on our website: EXPLORE WAYS TO HELP Follow and connect with us on various platforms! Facebook Instagram Linked In MeetUp We invite you to check out recordings of our educational sessions on our YouTube channel. Have a question? Get in touch with us! CONTACT US

Meal preparation can be a difficult task for people with ME/CFS. If possible, try to have some ready-made meals in the freezer or quick meal options for those days when you are very unwell or need to conserve energy for tomorrow's activities. We have curated a list of ready-made meals options below for pickup or delivery to your home. Easy Meals Meal preparation can be a difficult task for people with ME/CFS. If possible, try to have some ready-made meals in the freezer or quick meal options for those days when you are very unwell or need to conserve energy for tomorrow's activities. Consider cooking in bulk and freezing meal-sized portions. We have curated a list of ready-made meals options below for pickup or delivery to your home, or purchase at your supermarket. Not many would be affordable on a tight budget, but perhaps you can share with your whānau, in case they are in a position to purchase some meals for you from time to time. We hope to add supermarket bought easy-prep meal options as well soon. Please note that we made our best efforts to ensure the details were accurate when added, but we may have missed updating some details. Please double check information on the suppliers website before purchasing and do let us know if you discover an error or can suggest an addition. We are grateful to the following ready-made meal suppliers who have offered discounts for our ME/CFS community. See full details and conditions further below. Several suppliers also have discounts for first time purchases or offer specials regularly. Clean Meals - 10% discount EATL8R - 10% discount Kai 2 You - 10% discount Meal Prep - 10% discount My Kitchen Table - 15% discount Also worth highlighting in the list below: Nourish Oraka, a charity based in Shirley, Christchurch, offers free meals. Meals on Wheels may be an option for you. Ask your GP to refer you. Gluten free and dairy free options are available from Clean Meals, Fit Food, Health Kicks, My Kitchen Table, MYLK Food Store, Primal Kitchen, Richards Real Kitchen. Health Kicks offer low FODMAP options. DISCLAIMER: We have no formal relationship with the business activities listed on this website page. Links to these activities are included for convenience. ME/CFS Canterbury / West Coast is not responsible for the currency or accuracy of content on such websites and the inclusion of such links does not imply endorsement by MECFS Canterbury of the linked website or its provider, products and services offered. Readers are advised to take their own appropriate due diligence steps prior to engaging with the businesses and individuals listed. Meals on Wheels https://www.cab.org.nz/community-directory/KB00033364 Hot, nutritious meals for people who have difficulty preparing their own meals. Freshly made meals with a main and a dessert for 3, 4 or 5 days per week. Meals are subsidised in Canterbury and the West Coast by Health NZ and cost $8.70 each. Clients are invoiced at the end of each month and pay Health NZ Canterbury by monthly direct credit or by automatic payment each week/fortnight. Meals on Wheels (MOW) are available by referral from a General Practice team or other Health Professional for a person that meets the following criteria: unable to prepare a hot meal without assistance due to a medical condition or disability; have no family or whānau assistance readily available; need a delivered meal to maintain good nutrition and independence. Other restrictions may apply. For availability in other regions, visit https://info.health.nz/services-support/support-services/meals-on-wheels or search the CAB website. GLUTEN FREE, LACTOSE FREE, VEGETERIAN, DIABETIC, MINCE, PUREED AND SOFT OPTIONS ARE AVAILABLE. Delivery Details: Free delivery around noon each work day by volunteers, to Christchurch, Lincoln, Kaiapoi, Rangiora, Ashburton, Greymouth, Reefton, Hokitika, and some rural areas. Discount Offered - Nourish Oraka https://www.facebook.com/nourishoraka Free meals made from ingredients sourced from Kairos Food Rescue. This community group in Shirley, Christchurch, prepares free meals with ingredients sourced from Kairos Food Rescue, with the menu changing each week. All meals / soups are labelled with ingredients and allergens. GLUTEN FREE, DAIRY FREE AND VEGETARIAN OPTIONS SOMETIMES AVAILABLE. Delivery Details: Pickup only from store at 27 Acheson Ave, Shirley at limited times - usually Monday 1:30 to 2:30 and 5-6pm. Discount Offered - BBQuick https://bbquick.co.nz Real food, made properly — no shortcuts. Freshly made frozen full-sized meals, soups and desserts. Pricing starts at $14.49 per meal. Ready-to-go packs or pick-n-mix to build your own pack. VEGAN AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Shipped nationwide from Dunedin with same or next day dispatch. Example shipping fee for 8 meal pack is $14.50 for South Island and $19.50 for North Island delivery. Discount Offered SuperGold Card holders are eligible for $10 off every BBQuick order over $99. Balance by Sim https://balancebysimo.co.nz Ready made meals for a healthy lifestyle by award-winning chef. Freshly made main meals. Subscription or casual pricing starts from $52.00 for minimum of 3 meals per week. GLUTEN FREE, KETO, VEGETARIAN, LOW CARB AND DIABETIC OPTIONS AVAILABLE. Delivery Details: Delivered to your door in the Christchurch city area for $7 per delivery. Order by Sunday for Wednesday delivery. Discount Offered - Clean Meals https://cleanmeals.co.nz Eating clean doesn't need to be bland. Freshly made meals, breakfasts, and snacks. Meals are chilled not frozen. Prices start from $15.50 per meal. Subscriptions and one-off orders available. VEGETARIAN, VEGAN, GLUTEN FREE, DAIRY FREE, NUT FREE, SHELLFISH FREE, SOY FREE, SPICY AND BENSON DETOX OPTIONS ARE AVAILABLE. Delivery Details: Pickup available in Christchurch. Nationwide delivery to your doorstep on Tuesday afternoon. Rural delivery at own risk. The cut-off time to change your meal selections or place an order for the following week is the previous Thursday at 6pm. Discount Offered Use code MECFS25C for 10% off your order. Crisp and Vale https://crispandvale.co.nz Chef-made heat and eat ready meals. Made fresh and stored frozen. Freshly made frozen meals, sides, soup, and dessert. Main meals start from $20.00 serving 2 to 3 people. Casual orders. GLUTEN FREE AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Pickup in Sydenham. Same day or next day delivery in Christchurch and surrounding suburbs for $12 within 15km radius, or $25 for up to 25 kms, with minimum spend of $60. Discount Offered - EATL8R https://www.eatl8r.co.nz Nutritious meals delivered to you. The Eatl8r menu changes weekly and with the seasons. Meals, soups, desserts with petite size meals starting at $13 and regular size at $15. Ingredient information provided. Delivery Details: Pickup in Waltham or delivered to Christchurch city suburbs for $6 or Canterbury for $11. Deliveries are made on Thursdays. Discount Offered Use code MECFS10 for 10% off your order. Eat https://www.eat.co.nz Home of fresh, ready to heat and eat meals delivered to your door. Freshly made meals, soups, desserts, and baking with regular sized meals (400g) starting from $13.50 and large (500g) from $15. Frozen potluck boxes and Tiddly meals are frozen. VEGETARIAN OPTIONS ARE AVAILABLE AND TEXTURE MODIFIDED PUREE MEALS ARE AVAILABLE that meet the International Dysphagia Diet Standardisation (IDDSI) Level 4 Puree for people who have difficulty swallowing or have digestive problems. Delivery Details: Delivered nationwide from Wellington with a $35 shipping fee to the South Island. Order by 11am for delivery next day. Discount Offered - Farro https://www.farro.co.nz Dinner made deliciously easy. Build your own meal bundle and care package. Family meals, frozen pizzas, sides, soups, sauces, and desserts. Heat and Eat meals start from $14.99, 2-3 serve meals start from $19.99. Also available to purchase are meal bundles and ready-to-cook options. VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Delivered from Auckland to Christchurch and surrounding areas for $35. Order by Thursday 10am for delivery on Monday. Discount Offered - Fit Food https://www.fitfood.co.nz Healthier. Easier. Better. Fresh and frozen single serve meals, family meals, meal bases, sides, sauces, breakfast meals, and desserts. Fresh meals starting from $12.00. Frozen meals starting from $14.90. Family meals starting from $37.90. Subscription or casual orders. KETO, GLUTEN FREE, DAIRY FREE, VEGAN AND VEGETARIAN OPTIONS ARE AVAILABLE. Delivery Details: Pickup from Rangiora on Monday and Tuesday. Delivery fee within South Island is $12.50. Order by Thursday night for Tuesday delivery. Discount Offered - Freshchef.nz https://freshchef.nz Chef made. Hearty portions are sealed to lock in the freshness & flavour. Freshly made frozen meals and desserts. Meals start from $15.99 with most around $18.49. Order a subscription box or purchase one-off. GLUTEN FREE, VEGAN, VEGETARIAN AND KETO OPTIONS ARE AVAILABLE. Ingredient information provided. Delivery Details: Pickup in Rangiora or delivered nationwide the next day with shipping starting from $9.90. Free shipping on your first order. Discount Offered - Health Kicks https://healthkicks.nz When life happens. We have you covered. Fresh lunch and dinner meals changing each week. Plans start from $70.00 per week for 5 meals. Order meal packs by subscription or one-time purchase. MOST MEALS ARE GLUTEN AND DAIRY FREE. VEGETARIAN AND VEGAN OPTIONS ARE AVAILABLE. Delivery Details: Order by Monday evening for delivery in Christchurch, Timaru and Ashburton on the following Monday. Shipping within Christchurch around $7. Do not deliver to rural addresses. Discount Offered - Healthy Kiwi Dinners https://www.healthykiwidinners.co.nz/ Roast dinners and more that bring comfort, warmth and satisfaction. Frozen and fresh meals, salads, sandwiches, soup and desserts. Fresh meals from $14 and available in three different sizes. Frozen meals are $14 each. Bulk pricing specials. Order by phone. GLUTEN FREE AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Pickup in Woolston or delivered to Christchurch area only for around $8 on minimum order of $30. Discount Offered - Just Good Food https://justgoodfood.co.nz Want natural, home-made meals without the fuss of making it? Frozen meals and desserts. Regular meals $12.00, large mains $14.00, Desserts are $10.00. Ingredient information provided. Delivery Details: Christchurch delivery only with $5 fee for minimum order of $40. Free delivery for orders over $100. Order by 2pm Tuesday for delivery Thursday. Discount Offered - Kai 2 You https://www.kai2you.co.nz Ready to heat and eat meals. Made with love. Fresh meals, frozen pies and sausage rolls, soups, scones and desserts. Regular meals from $15, petite meals $11, soup $5. No subscriptions. New menu every week. Gift vouchers are available. Ingredient information available. Delivery Details: Pickup in Papanui or delivered to greater Christchurch with $6-$8 per delivery, based on a minimum order value of $30. Discount Offered Use code MECF10 for 10% off. Supergold card holders get 14% off with code super14. MYLK Food Store https://mylkfoodstore.com From my little kitchen to yours. Handcrafted nutritious meals ready in minutes. Freshly made meals, soups, sides and desserts. Soups start from $9, main dishes from $9.90 (single 200g size). Menu changes each week. One-off orders. Gift vouchers available. GLUTEN FREE, DAIRY FREE AND VEGATERIAN OPTIONS AVAILABLE. Delivery Details: Delivered from Napier to the South Island for $25. Cannot deliver to rural addresses. Order before 4pm on Tuesday for delivery following Tuesday. Discount Offered - Meal Box https://www.mealbox.nz Chef crafted meals. Save time and energy. Freshly made main meals that are flash frozen, and breakfasts. Main Meals from $15.99 each. Breakfast add ons are $9.00. Purchase one-time or on subscription. KETO, LOW CALORIE AND PROTEIN+ OPTIONS AVAILABLE. Ingredients information provided. Delivery Details: South Island shipping cost is $29.99, and North Island is $14.99. Minimum of 5 meals need to be ordered. Next day delivery. Discount Offered - Meal Prep https://mealprep.nz High-protein meals—no prep, no stress. Just heat, eat, and enjoy! Freshly made breakfast meals, lunch and dinners. Lunch and dinner from $14.90. Care packages and gift vouchers available. DAIRY FREE, VEGAN, PLANT BASED AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Delivered to the South Island within two days for $28. Discount Offered Use code MECFS10 for 10% off first order of 3 different meals above $50. Not available on subscriptions or meal plans. My Food Bag – Ready Made Meals https://www.myfoodbag.co.nz/ready-made-meals Award winning. Fresh, Ready-Made Meals. Freshly made meals, soups and dessert. 18 meals to choose from every week including homestyle favourites and healthy options. Order in bulk from 4, 6, 9 or 12 meals per week. Pricing starts from $72 for 4 meals ($18 per plate). Purchase on subscription or one-off order. Ingredient information provided. Delivery Details: New Zealand wide delivery $15. Delivered to your door on Saturday, Sunday or Monday depending on your area. Discount Offered - My Kitchen Table https://mykitchentable.nz Chef quality meals proudly made fresh and frozen in Nelson. Freshly made frozen meals, soups and meal boxes. Soups from $9.99 each, single mains from $12.99 and double from $19.99. Meal Boxes start from $89.00. Also available in selected Fresh Choice and New World supermarkets. GLUTEN FREE, DAIRY FREE, VEGAN AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Delivered from Nelson to Canterbury and West Coast $14.90 per order. Orders made by noon are normally delivered the next day. Discount Offered Use code MECFS15 for 15% off. Not available on specials. Pasta Vera https://pasta.co.nz/product-category/retail-range/ready-meals/ Locally made lasagne, filled pasta, and ready meals. Lasagne, pasta and other meals. Meals from $9.49. VEGETARIAN, VEGAN, GLUTEN FREE AND DAIRY FREE OPTIONS AVAILABLE. Delivery Details: Available from selected supermarkets and the factory store in Wigram. Discount Offered - Primal Kitchen https://primalkitchen.co.nz All natural. Grain free. No refined sugar. Soy free. Freshly made meals, frozen meals, meal packs, subscriptions, family packs, snacks and treats. Frozen Meals start from $14.95, frozen subscriptions start from $69.95 per week, Random selection of frozen meals are $15.25. Gift Vouchers available. GLUTEN FREE, DAIRY FREE AND KETO OPTIONS ARE AVAILABLE. Delivery Details: Delivered from Porirua, Wellington, to South Island for $35. Order on Friday for delivery on following Tuesday or Thursday. Discount Offered - Radix Nutrition https://radixnutrition.com/ Built for peak performance. Made for every day. Freeze dry meals, add water or milk (meal dependant) and have a ready to eat meal. Offering breakfasts, savoury meals, and protein drinks. Buy as a one-off purchase or as monthly subscriptions. Purchase boxes of 6-8, offering variety packs to test all flavours. Example pricing: Fodmap Meals. $99.90/one-time or $84.92/month. All meals are labeled with allergen and ingredients. FODMAP FRIENDLY, PLANT-BASED, GLUTEN FREE. Nationwide Shipping in Aotearoa and Australia. Free shipping for orders over $99. Shipping cost estimate of $8.90 for non-free orders. Discount Offered - Richards Real Kitchen https://www.richardsrealkitchen.co.nz Delicious fresh and frozen heat and eat meals in single and family size. Fresh and frozen meals, soups and desserts. Meals from $14 each for a single serve (large by weight, volume and protein), family-sized from $39. One-off orders. Gift vouchers available. GLUTEN FREE, VEGAN, DAIRY FREE AND VEGETARIAN OPTIONS AVAILABLE. Fewer processed additives. Delivery Details: Pickup from Wigram or delivery fee from $5 for Christchurch and surrounding areas. Order by 11am for same day delivery. Leave a chilly bin on the doorstep for delivery. Discount Offered - Strength Meals https://strengthmealsco.co.nz/ High protein, macro balanced meals formulated by nutritionist Frozen meals and chilled or canned soups. Soups $5.50 and meals $13.50. VEGETARIAN, VEGAN, GLUTEN FREE, DAIRY FREE, LOW SUGAR OPTIONS ARE AVAILABLE. Delivery Details: Only available from Woolworths supermarkets. Discount Offered - Timata https://www.timata.nz Tīmata provides easy access to affordable, nutritious ready-made meals. Fresh meals and desserts purchased in bulk. Six meals for $79.98 ($13.33 each) or 8 Meals for $99.98 ($12.50 each). Subscription, with variable weekly options. Timata provides additional supports designed for the Enabled Good Lives disabled community including delivery of medications and groceries, and a platform to connect providers with members. Delivery Details: Free delivery nationwide from Invercargill, excluding rural delivery addresses. Delivered overnight or on the day selected. Discount Offered - Traiteur https://www.traiteur.co.nz/order/heat-eat Homemade happiness, delivered to you. Heat and eat meals, soups, salads, sweet treats, and butchery meat. Heat and eat meals start from $14.50, soups $10.50, salads from $7.50, weekly menu starts from $21.95. treats from $4.95. One-off orders. VEGETARIAN OPTIONS ARE AVAILABLE. Delivery Details: Pickup from Papanui or delivery in surrounding neighbourhood on Tuesday, Thursday, and Friday. Discount Offered -

Spectrum of Severity The severity of ME/CFS is on a spectrum. The level of symptoms and severity experienced by each person with ME/CFS is unique and is likely to fluctuate over time. Some people do improve or go into remission for periods of time. Often those who are most severely unwell are those who were not given the advice to rest and pace activites when first unwell. Historically, four general terms are used to categorise the wide spectrum of disease severity and functional impairment seen in ME/CFS: Mild, Moderate, Severe, Very Severe. It’s worth noting that a ‘Mild’ level of severity may be close to a 50% reduction in functionality – certainly not a ‘mild’ impact for the person living with it. For people who are in the Mild category, they may be able to live a fairly normal life if they avoid exceeding their activity limits. Mild Mobile and able to self-care. May be working or attending school, but often with accommodations and by reducing other domestic and social activities. Severe Mostly homebound. Limited activities of daily living (e.g., self-care, showering, dressing). Severe cognitive difficulties. May be wheelchair dependent. Moderate Reduced mobility and restricted activities of daily living. Requires frequent rest periods and typically not working or attending school. Very Severe Bedbound. Unable to carry out most activities of daily living for themselves. Often extreme sensory sensitivity to light, sound, touch, etc. May need total care Quality of Life ME/CFS is a disabling illness that affects daily life. Studies that look at the Health-Related Quality of Life index (HRQoL) consider five dimensions: Mobility Self-care Usual activities Pain/discomfort Anxiety/depression Results of studies for people with ME/CFS confirm a significantly lower quality of life than the population mean and the lowest of all the compared conditions. ME/CFS – 0.47 Depression - 0.62 Multiple Sclerosis – 0.67 Breast Cancer – 0.75 General Population – 0.85 Link https://doi.org/10.1371/journal.pone.0132421 PREVIOUS PAGE NEXT PAGE