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The National Institute for Health and Care Excellence (NICE, UK) has today, Friday 29 October 2021, published the guideline for ME/CFS: diagnosis and management, after a robust 3 year review process. < Back NICE releases new guidance for ME/CFS 28 Oct 2021 The National Institute for Health and Care Excellence (NICE, UK) has today, Friday 29 October 2021, published the guideline for ME/CFS: diagnosis and management, after a robust 3 year review process. New NICE guideline creates hope - a paradigm shift in the care of people with #MEcfs Extracts from the Science for ME press release... "The National Institute for Health and Care Excellence (NICE, UK) has today, Friday 29 October 2021, published the guideline for #MyalgicEncephalomyelitis (or encephalopathy)/ #chronicfatiguesyndrome : diagnosis and management." "The guideline replaces the existing clinical guideline published in 2007 and aims to improve awareness and understanding about ME/CFS, provide guidance on when to suspect it (to enable earlier diagnosis), and includes recommendations on access to care, symptom management and care planning." "NICE staff and the members of the guideline committee have worked for over three years to carefully examine the evidence... The guideline is a publication of international significance, providing an example of good practice that will influence ME/CFS care around the world." - Including here in New Zealand. "The guideline makes it clear that graded exercise therapy (GET) should no longer be offered to people with ME/CFS, and that both cognitive behavioural therapy (CBT) and therapies based on physical activity are not curative. This is based on a review of the evidence, which rated the outcomes for studies of these interventions all of low or very low quality. This is a welcome and significant, evidence based change in approach from the 2007 ME/CFS guideline, in which CBT and GET were central to treatment. Link to the new NICE guidelines:  https://www.nice.org.uk/guidance/ng206 Previous Next

Getting Diagnosed At this stage, there are no specific diagnostic tests available that can be done in a clinical setting to confirm ME/CFS. However, healthcare professionals can make a diagnosis by using the diagnostic criteria, excluding other possible conditions, and ensuring that post-exertional malaise (PEM) is present. VIEW THE DIAGNOSTIC CRITERIA Your doctor is likely to refer to the clinical advice for ME/CFS on the Health Pathways website provided by Te Whatu Ora | Health New Zealand and may: Ask about you and your family’s health history. Ask about anything you have tried that makes the symptoms better or worse. Suggest that you keep a diary of symptoms and activity. Do a physical exam or take blood tests to rule out any illnesses that may cause similar symptoms. We have a lett e r that you can take to your GP to let them know about the new clinical guidelines for ME/CFS on the Health Pathways website. DOWNLOAD A LETTER FOR CANTERBURY GPS DOWNLOAD A LETTER FOR WEST COAST GPS Our Registered Nurse Service is available to support you when you are wondering if you have ME/CFS and are seeking a diagnosis. Our nurses work through the assessment process against the diagnostic criteria with you, and then, with your permission, can share the result with your GP. How we help For a comprehensive list of clinical primers and other resources for health professionals refer to: Link https://m.e.awareness.nz/resources-health-professionals/ PREVIOUS PAGE NEXT PAGE

Meal preparation can be a difficult task for people with ME/CFS. If possible, try to have some ready-made meals in the freezer or quick meal options for those days when you are very unwell or need to conserve energy for tomorrow's activities. We have curated a list of ready-made meals options below for pickup or delivery to your home. Easy Meals Meal preparation can be a difficult task for people with ME/CFS. If possible, try to have some ready-made meals in the freezer or quick meal options for those days when you are very unwell or need to conserve energy for tomorrow's activities. Consider cooking in bulk and freezing meal-sized portions. We have curated a list of ready-made meals options below for pickup or delivery to your home, or purchase at your supermarket. Not many would be affordable on a tight budget, but perhaps you can share with your whānau, in case they are in a position to purchase some meals for you from time to time. We hope to add supermarket bought easy-prep meal options as well soon. Please note that we made our best efforts to ensure the details were accurate when added, but we may have made some mistakes. Please double check details on the suppliers website before purchasing and do let us know if you discover an error or can suggest an additon. We are grateful to the following ready-made meal suppliers who have offered discounts for our ME/CFS community. See full details and conditions further below. Several suppliers also have discounts for first time purchases or offer specials regularly. Clean Meals - 10% discount EATL8R - 10% discount Kai 2 You - 10% discount Meal Prep - 10% discount My Kitchen Table - 15% discount Also worth highlighting in the list below: Nourish Oraka, a charity based in Shirley, Christchurch, offer meals for $7 each. Meals on Wheels may be an option for you. Ask your GP to refer you. Gluten free and dairy free options are available from Clean Meals, Fit Food, Health Kicks, My Kitchen Table, MYLK Food Store, Primal Kitchen, Richards Real Kitchen. Health Kicks offer low FODMAP options. DISCLAIMER: We have no formal relationship with the business activities listed on this website page. Links to these activities are included for convenience. ME/CFS Canterbury / West Coast is not responsible for the currency or accuracy of content on such websites and the inclusion of such links does not imply endorsement by MECFS Canterbury of the linked website or its provider, products and services offered. Readers are advised to take their own appropriate due diligence steps prior to engaging with the businesses and individuals listed. Meals on Wheels https://www.cab.org.nz/community-directory/KB00033364 Hot, nutritious meals for people who have difficulty preparing their own meals. Freshly made meals with a main and a dessert for 3, 4 or 5 days per week. Meals are subsidised in Canterbury and the West Coast by Health NZ and cost $8.70 each. Clients are invoiced at the end of each month and pay Health NZ Canterbury by monthly direct credit or by automatic payment each week/fortnight. Meals on Wheels (MOW) are available by referral from a General Practice team or other Health Professional for a person that meets the following criteria: unable to prepare a hot meal without assistance due to a medical condition or disability; have no family or whānau assistance readily available; need a delivered meal to maintain good nutrition and independence. Other restrictions may apply. For availability in other regions, visit https://info.health.nz/services-support/support-services/meals-on-wheels or search the CAB website. GLUTEN FREE, LACTOSE FREE, VEGETERIAN, DIABETIC, MINCE, PUREED AND SOFT OPTIONS ARE AVAILABLE. Delivery Details: Free delivery around noon each work day by volunteers, to Christchurch, Lincoln, Kaiapoi, Rangiora, Ashburton, Greymouth, Reefton, Hokitika, and some rural areas. Discount Offered - Nourish Oraka https://nourishoraka.com Affordable healthy meals made by a community group in Shirley, Christchurch. Fresh and frozen meals and soups. Limited range available. Meals from $7 (extra 50c if you don't intend to return the container provided), soup is free or $3. Some items are freshly cooked each Monday and Wednesday and refrigerated for pick up. Unused meals are then frozen and offered for later purchase. GLUTEN FREE, DAIRY FREE AND VEGETARIAN OPTIONS AVAILABLE. see https://nourishoraka.com/products/dietary-options. Delivery Details: Pickup available from in store, 27 Acheson Ave, Shirley at limited times on Monday and Wednesday, or pre-ordered frozen pick-ups are available anytime at Riverlution Pantry, 46A Vogel St, Richmond. They are trialling $5 delivery on Mondays to addresses within 5km. Contact ME Respite https://merespite.org.nz to organise delivery by volunteers within greater Christchurch. Discount Offered - BBQuick https://bbquick.co.nz Real food, made properly — no shortcuts. Freshly made frozen full-sized meals, soups and desserts. Pricing starts at $14.49 per meal. Ready-to-go packs or pick-n-mix to build your own pack. VEGAN AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Shipped nationwide from Dunedin with same or next day dispatch. Example shipping fee for 8 meal pack is $14.50 for South Island and $19.50 for North Island delivery. Discount Offered SuperGold Card holders are eligible for $10 off every BBQuick order over $99. Balance by Sim https://balancebysimo.co.nz Ready made meals for a healthy lifestyle by award-winning chef. Freshly made main meals. Subscription or casual pricing starts from $52.00 for minimum of 3 meals per week. GLUTEN FREE, KETO, VEGETARIAN, LOW CARB AND DIABETIC OPTIONS AVAILABLE. Delivery Details: Delivered to your door in the Christchurch city area for $7 per delivery. Order by Sunday for Wednesday delivery. Discount Offered - Clean Meals https://cleanmeals.co.nz Eating clean doesn't need to be bland. Freshly made meals, breakfasts, and snacks. Meals are chilled not frozen. Prices start from $15.50 per meal. Subscriptions and one-off orders available. VEGETARIAN, VEGAN, GLUTEN FREE, DAIRY FREE, NUT FREE, SHELLFISH FREE, SOY FREE, SPICY AND BENSON DETOX OPTIONS ARE AVAILABLE. Delivery Details: Pickup available in Christchurch. Nationwide delivery to your doorstep on Tuesday afternoon. Rural delivery at own risk. The cut-off time to change your meal selections or place an order for the following week is the previous Thursday at 6pm. Discount Offered Use code MECFS25C for 10% off your order. Crisp and Vale https://crispandvale.co.nz Chef-made heat and eat ready meals. Made fresh and stored frozen. Freshly made frozen meals, sides, soup, and dessert. Main meals start from $20.00 serving 2 to 3 people. Casual orders. GLUTEN FREE AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Pickup in Sydenham. Same day or next day delivery in Christchurch and surrounding suburbs for $12 within 15km radius, or $25 for up to 25 kms, with minimum spend of $60. Discount Offered - EATL8R https://www.eatl8r.co.nz Nutritious meals delivered to you. The Eatl8r menu changes weekly and with the seasons. Meals, soups, desserts with petite size meals starting at $13 and regular size at $15. Ingredient information provided. Delivery Details: Pickup in Waltham or delivered to Christchurch city suburbs for $6 or Canterbury for $11. Deliveries are made on Thursdays. Discount Offered Use code MECFS10 for 10% off your order. Eat https://www.eat.co.nz Home of fresh, ready to heat and eat meals delivered to your door. Freshly made meals, soups, desserts, and baking with regular sized meals (400g) starting from $13.50 and large (500g) from $15. Frozen potluck boxes and Tiddly meals are frozen. VEGETARIAN OPTIONS ARE AVAILABLE AND TEXTURE MODIFIDED PUREE MEALS ARE AVAILABLE that meet the International Dysphagia Diet Standardisation (IDDSI) Level 4 Puree for people who have difficulty swallowing or have digestive problems. Delivery Details: Delivered nationwide from Wellington with a $35 shipping fee to the South Island. Order by 11am for delivery next day. Discount Offered - Farro https://www.farro.co.nz Dinner made deliciously easy. Build your own meal bundle and care package. Family meals, frozen pizzas, sides, soups, sauces, and desserts. Heat and Eat meals start from $14.99, 2-3 serve meals start from $19.99. Also available to purchase are meal bundles and ready-to-cook options. VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Delivered from Auckland to Christchurch and surrounding areas for $35. Order by Thursday 10am for delivery on Monday. Discount Offered - Fit Food https://www.fitfood.co.nz Healthier. Easier. Better. Fresh and frozen single serve meals, family meals, meal bases, sides, sauces, breakfast meals, and desserts. Fresh meals starting from $12.00. Frozen meals starting from $14.90. Family meals starting from $37.90. Subscription or casual orders. KETO, GLUTEN FREE, DAIRY FREE, VEGAN AND VEGETARIAN OPTIONS ARE AVAILABLE. Delivery Details: Pickup from Rangiora on Monday and Tuesday. Delivery fee within South Island is $12.50. Order by Thursday night for Tuesday delivery. Discount Offered - Freshchef.nz https://freshchef.nz Chef made. Hearty portions are sealed to lock in the freshness & flavour. Freshly made frozen meals and desserts. Meals start from $15.99 with most around $18.49. Order a subscription box or purchase one-off. GLUTEN FREE, VEGAN, VEGETARIAN AND KETO OPTIONS ARE AVAILABLE. Ingredient information provided. Delivery Details: Pickup in Rangiora or delivered nationwide the next day with shipping starting from $9.90. Free shipping on your first order. Discount Offered - Health Kicks https://healthkicks.nz When life happens. We have you covered. Fresh lunch and dinner meals changing each week. Plans start from $70.00 per week for 5 meals. Order meal packs by subscription or one-time purchase. MOST MEALS ARE GLUTEN AND DAIRY FREE. VEGETARIAN AND VEGAN OPTIONS ARE AVAILABLE. Delivery Details: Order by Monday evening for delivery in Christchurch, Timaru and Ashburton on the following Monday. Shipping within Christchurch around $7. Do not deliver to rural addresses. Discount Offered - Healthy Kiwi Dinners https://www.healthykiwidinners.co.nz/ Roast dinners and more that bring comfort, warmth and satisfaction. Frozen and fresh meals, salads, sandwiches, soup and desserts. Fresh meals from $14 and available in three different sizes. Frozen meals are $14 each. Bulk pricing specials. Order by phone. GLUTEN FREE AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Pickup in Woolston or delivered to Christchurch area only for around $8 on minimum order of $30. Discount Offered - Just Good Food https://justgoodfood.co.nz Want natural, home-made meals without the fuss of making it? Frozen meals and desserts. Regular meals $12.00, large mains $14.00, Desserts are $10.00. Ingredient information provided. Delivery Details: Christchurch delivery only with $5 fee for minimum order of $40. Free delivery for orders over $100. Order by 2pm Tuesday for delivery Thursday. Discount Offered - Kai 2 You https://www.kai2you.co.nz Ready to heat and eat meals. Made with love. Fresh meals, frozen pies and sausage rolls, soups, scones and desserts. Regular meals from $15, petite meals $11, soup $5. No subscriptions. New menu every week. Gift vouchers are available. Ingredient information available. Delivery Details: Pickup in Papanui or delivered to greater Christchurch with $6-$8 per delivery, based on a minimum order value of $30. Discount Offered Use code MECF10 for 10% off. Supergold card holders get 14% off with code super14. MYLK Food Store https://mylkfoodstore.com From my little kitchen to yours. Handcrafted nutritious meals ready in minutes. Freshly made meals, soups, sides and desserts. Soups start from $9, main dishes from $9.90 (single 200g size). Menu changes each week. One-off orders. Gift vouchers available. GLUTEN FREE, DAIRY FREE AND VEGATERIAN OPTIONS AVAILABLE. Delivery Details: Delivered from Napier to the South Island for $25. Cannot deliver to rural addresses. Order before 4pm on Tuesday for delivery following Tuesday. Discount Offered - Meal Box https://www.mealbox.nz Chef crafted meals. Save time and energy. Freshly made main meals that are flash frozen, and breakfasts. Main Meals from $15.99 each. Breakfast add ons are $9.00. Purchase one-time or on subscription. KETO, LOW CALORIE AND PROTEIN+ OPTIONS AVAILABLE. Ingredients information provided. Delivery Details: South Island shipping cost is $29.99, and North Island is $14.99. Minimum of 5 meals need to be ordered. Next day delivery. Discount Offered - Meal Prep https://mealprep.nz High-protein meals—no prep, no stress. Just heat, eat, and enjoy! Freshly made breakfast meals, lunch and dinners. Lunch and dinner from $14.90. Care packages and gift vouchers available. DAIRY FREE, VEGAN, PLANT BASED AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Delivered to the South Island within two days for $28. Discount Offered Use code MECFS10 for 10% off first order of 3 different meals above $50. Not available on subscriptions or meal plans. My Food Bag – Ready Made Meals https://www.myfoodbag.co.nz/ready-made-meals Award winning. Fresh, Ready-Made Meals. Freshly made meals, soups and dessert. 18 meals to choose from every week including homestyle favourites and healthy options. Order in bulk from 4, 6, 9 or 12 meals per week. Pricing starts from $72 for 4 meals ($18 per plate). Purchase on subscription or one-off order. Ingredient information provided. Delivery Details: New Zealand wide delivery $15. Delivered to your door on Saturday, Sunday or Monday depending on your area. Discount Offered - My Kitchen Table https://mykitchentable.nz Chef quality meals proudly made fresh and frozen in Nelson. Freshly made frozen meals, soups and meal boxes. Soups from $9.99 each, single mains from $12.99 and double from $19.99. Meal Boxes start from $89.00. Also available in selected Fresh Choice and New World supermarkets. GLUTEN FREE, DAIRY FREE, VEGAN AND VEGETARIAN OPTIONS AVAILABLE. Delivery Details: Delivered from Nelson to Canterbury and West Coast $14.90 per order. Orders made by noon are normally delivered the next day. Discount Offered Use code MECFS15 for 15% off. Not available on specials. Pasta Vera https://pasta.co.nz/product-category/retail-range/ready-meals/ Locally made lasagne, filled pasta, and ready meals. Lasagne, pasta and other meals. Meals from $9.49. VEGETARIAN, VEGAN, GLUTEN FREE AND DAIRY FREE OPTIONS AVAILABLE. Delivery Details: Available from selected supermarkets and the factory store in Wigram. Discount Offered - Primal Kitchen https://primalkitchen.co.nz All natural. Grain free. No refined sugar. Soy free. Freshly made meals, frozen meals, meal packs, subscriptions, family packs, snacks and treats. Frozen Meals start from $14.95, frozen subscriptions start from $69.95 per week, Random selection of frozen meals are $15.25. Gift Vouchers available. GLUTEN FREE, DAIRY FREE AND KETO OPTIONS ARE AVAILABLE. Delivery Details: Delivered from Porirua, Wellington, to South Island for $35. Order on Friday for delivery on following Tuesday or Thursday. Discount Offered - Richards Real Kitchen https://www.richardsrealkitchen.co.nz Delicious fresh and frozen heat and eat meals in single and family size. Fresh and frozen meals, soups and desserts. Meals from $14 each for a single serve (large by weight, volume and protein), family-sized from $39. One-off orders. Gift vouchers available. GLUTEN FREE, VEGAN, DAIRY FREE AND VEGETARIAN OPTIONS AVAILABLE. Fewer processed additives. Delivery Details: Pickup from Wigram or delivery fee from $5 for Christchurch and surrounding areas. Order by 11am for same day delivery. Leave a chilly bin on the doorstep for delivery. Discount Offered - Strength Meals https://strengthmealsco.co.nz/ High protein, macro balanced meals formulated by nutritionist Frozen meals and chilled or canned soups. Soups $5.50 and meals $13.50. VEGETARIAN, VEGAN, GLUTEN FREE, DAIRY FREE, LOW SUGAR OPTIONS ARE AVAILABLE. Delivery Details: Only available from Woolworths supermarkets. Discount Offered - Timata https://www.timata.nz Tīmata provides easy access to affordable, nutritious ready-made meals. Fresh meals and desserts purchased in bulk. Six meals for $79.98 ($13.33 each) or 8 Meals for $99.98 ($12.50 each). Subscription, with variable weekly options. Timata provides additional supports designed for the Enabled Good Lives disabled community including delivery of medications and groceries, and a platform to connect providers with members. Delivery Details: Free delivery nationwide from Invercargill, excluding rural delivery addresses. Delivered overnight or on the day selected. Discount Offered - Traiteur https://www.traiteur.co.nz/order/heat-eat Homemade happiness, delivered to you. Heat and eat meals, soups, salads, sweet treats, and butchery meat. Heat and eat meals start from $14.50, soups $10.50, salads from $7.50, weekly menu starts from $21.95. treats from $4.95. One-off orders. VEGETARIAN OPTIONS ARE AVAILABLE. Delivery Details: Pickup from Papanui or delivery in surrounding neighbourhood on Tuesday, Thursday, and Friday. Discount Offered -

Over time, you will discover ways that work for you to save your energy and help to make your everyday activities more manageable. It can be really useful to hear from others what they to do make things simpler and to reduce symptom flares. Lifehacks and Tips Over time, you will discover ways that work for you to save your energy and help to make your everyday activities more manageable. It can be really useful to hear from others what they to do make things simpler and to reduce symptom flares. Anna-Maria's Lifehacks Anna-Maria Covich has collated a range of life hacks learnt from managing (and often failing to manage) her ME/CFS over many years. We invite you to watch the recording of her presentation on her tips and tricks and why she finds them helpful. Whether you are newly diagnosed with ME/CFS or have some experience living with ME/CFS, you are likely to find some new ideas for saving energy and managing symptoms from this session. View the presentation on YouTube or review the pdf of the slide deck . We also have printed booklets of the slide deck - feel free to order a copy from our library. To discuss this topic further, come along to one of our meetings or connect with others online. Other Resources Library of articles on www.cfsselfhelp.org/library from the ME/CFS and Fibromyalgia Self-Help Program, a non-profit organisation founded by Bruce Campbell, PhD, a recovered CFS patient. The ME/CFS Crash Survival Guide from Bateman Horne Centre, USA. Advice from ME Association UK, who are strongly evidence-based. They provide general guidance and leaflets covering a wide range of topics meassociation.org.uk/free-literature-downloads/ Visit our Links page for more information.

Testimonials Feedback received from a member in our 2023 Annual Survey “I just feel amazed that the organisation exists. I know that if I have an issue related to CFS that I cannot resolve myself, there is someone I can ask who will understand, and who may know how to get me the help. I also appreciate the kind and social nature of much of the communication; this is a health condition but it affects every domain of our lives, and so the efforts to connect and facilitate care and fun and connection even beyond the healthcare domain feel especially profound. You’d only set up your organisation that way if you understood what weird and indirect impacts this illness can have on your life, so to me the whole thing communicates understanding and an approach of 'you are welcome here'. What a beautiful thing to have when you are dealing with such a complex and overwhelming illness."

When living with chronic illness it is natural to grieve the losses and find it difficult to cope with at times. < Back Mental Health Awareness Week 5-12 October 2025 5 Oct 2025 When living with chronic illness it is natural to grieve the losses and find it difficult to cope with at times. View our campaign on our facebook Five ways to support mental wellbeing for ME/CFS We need to acknowledge that it is incredibly challenging living with a disabling chronic illness like ME/CFS. It can significantly reduce options and quality of life. It is natural to grieve the losses and to find it difficult to cope with at times, especially for those who are very unwell and not receiving much support. If you live with ME/CFS or long COVID we suggest the following strategies to support your mental wellbeing. If you have whānau affected by ME/CFS, we invite you to let them guide you on how you can support them to explore these strategies. ✦ Prioritise rest. Take regular rest breaks throughout the day. Rest before and after activities. Rest as soon as you notice symptoms increasing. ✦ Simplify. Prioritise what to spend your limited energy on. Find ways to do things that use less energy. ✦ Connect. Allocate time for friendships with people who understand or care. Join an online community of people who can relate to your experiences of chronic illness. ✦ Look for joy. Schedule in small activities or pastimes that you enjoy or that add lightness. ✦ One moment at a time. Acknowledge the challenges. Be patient with yourself. Practice gentle self-care. __________ . Need help now? Call/text 1737 (NZ) for free counselling support. Visit: mecfscanterbury.nz/living-with-me-cfs/mental-wellbeing for support options Disclaimer: https://www.mecfscanterbury.nz/about-us/disclaimer Previous Next

Help a friend with ME/CFS If you know someone who lives with ME/CFS, your help and support can make an important difference to their lives. Ask them what would make things easier for them, and what support they would like. Perhaps prepare a meal, provide quiet company, help with housework or maintenance, or pay a bill. If you invite them to an event, consider how to reduce the energy required of them, provide a quiet space to rest, and be aware that they may need to cancel on the day if they are too unwell. Believe them. Learn about their experience and the illness. Remember to manage the support you give around your own needs. Possible next steps: Support your friend to join us so that they can receive our services. FILL OUT OUR MEMBERSHIP FORM Have any questions? Please reach out to us. CONTACT US Guidance for hosting and gifts:

Bequest A gift of any size in your Will, can increase quality of life for many people affected by ME/CFS and Long Covid. MECFS Canterbury recommends talking to a solicitor to write or update your Will. They will require our registered charity number to ensure your gift goes to the right place. Before getting in touch with them, you could start thinking about how you would like to give. You may want to consider giving a: Residual gift After providing for your family and loved ones, you can gift the remainder of your estate, or part of it, to MECFS Canterbury. Percentage You could divide your estate between a number of people and charitable organisations by allocating a percentage to each one. Specific gift This could be a specific sum, jewellery, real estate, shares or anything else you possess. You will also need this information: Our registered address is MECFS Canterbury, PO Box 10090, Phillipstown, Christchurch 8145. Our registered charity number is CC57086. If you would like any further information, or if you would like to talk to our Manager in confidence, please call 020 4091 9153, or email info@mecfscanterbury.nz . Please let us know of your intentions It would be very helpful for us if you let us know your intentions. Leaving a gift to us means a lot and we would like to be able to thank you for this. CONTACT US On behalf of our ME/CFS community, thank you for your consideration.

Volunteer Outreach Services We have a growing team of wonderful volunteers in our Outreach Service who provide one-off or regular practical support for people affected by ME/CFS. Our kind volunteers help with tasks such as housework, dog-walking, gardening, friendly company, and technical support. This support can help clients to stabilise symptoms, manage obligations and domestic activities, and reduce isolation. We won’t always have a volunteer to match with you in your area, but if you let us know what your needs are, we can certainly try to find someone. All our volunteers have a clean result from a Police Check, are given information about ME/CFS, and sign confidentiality and other volunteer agreements. A quick note to set expectations of our Outreach Service... T here are some factors affecting the capacity of this service currently: It is coordinated by a part time volunteer, and sometimes the coordinator position itself is vacant. It takes time to onboard volunteers and then to match them with clients that need the help offered in the suburb needed. Volunteers do not always stay for long, as they may move onto employment or further study. However, please do put your name on the list if you are interested in this support. We can't guarantee we will find a volunteer for you, but it makes it possible if we know what your needs are. To access this service: To refer yourself to the Volunteer Outreach Service, sign up as a member and note on the form what help would be beneficial, and one of our team will be in touch. FILL OUT OUR MEMBERSHIP FORM CONTACT US If you are already a member, send us an email about the help you are needing.

Registered Nurse Service Our Registered Nurses provide a range of clinical supports for our members and their whanau. A Nurse can also talk to your health team, education provider and workplace, to improve understanding and to discuss care and accommodations. The Registered Nurse Service is free and is delivered through home visits, zoom consultations, and other interactions to people of all ages. An initial assessment involves discussing your previous medical history, your current situation and what ongoing supports you may need. Areas of support may include: Clinical support for symptom management and obtaining a diagnosis. Short term loan of a wearable activity tracker, to help monitor the impact of your activity on your symptoms, and to assist you to pace within your energy envelope. Advocacy with GP’s, Physicians, allied health, employers, education providers, whānau and others. Management plans for students attending the Southern Regional Health School. (SRHS is a state school for children in Years 1 to 13 who are unwell.) Referrals to allied health and other external supportive services (including CDHB Occupational Therapy, CDHB LTS-CHC (Long Term Support – Chronic Health Conditions), Pegasus Health PCW (Partnership Community Workers), Comcare – Peer Support, Total Mobility Card) Applications for the Hāpai Access Card which give people with disabilities better access and support from retailers and public areas. Due to funding constraints, our Registered Nurse Service is only available to people who have or suspect they have ME/CFS or Long Covid in the Canterbury and West Coast regions. The exception to this is for young people from throughout the South Island who attend the Southern Regional Health School. Please note that there is currently a waiting list for our Registered Nurse Service and you may need to wait for several months before receiving first contact from a nurse. We apologise for this and assure you that we are working hard to increase the funding for our services. To access this service: To refer yourself to the Registered Nurse Service, sign up as a member and note on the form what help would be beneficial, and one of our team will be in touch. Existing members can email us to request a referral to the Registered Nurse Service. FILL OUT OUR MEMBERSHIP FORM OR ASK YOUR GP TO FILL OUT THE REFERRAL FORM Our Registered Nurse team is also available to provide general information about ME/CFS to medical professionals and community-based service providers.

Contact Form: First Name Last Name Email Phone Topics Tell us what you need help with SEND Thanks for query. We’ll get back to you shortly. Our Contact Details: For any enquiries, please contact us via the form above, or by email, text, or phone. Email: info@mecfscanterbury.nz Text: 020 4027 0176 Phone: 03 365 5887 Postal address: PO Box 10090, Phillipstown, Christchurch 8145 Our Office: Please ring to make a time to visit. The office is not always open as we are a part-time team, and often have appointments outside the office. Our office is located at: 71 Orbell St, Sydenham, Christchurch 8023 There is onsite carparking. Use park #7 or #8, or one of the visitor carparks. Christchurch Venue: Our monthly Christchurch in-person meetings are held at the lovely Mary Potter Community Centre. Address: 442 Durham St North, St Albans, Christchurch 8014 This venue is just north of Bealey Avenue and has 30 onsite carparks. It also has comfortable lounge chairs and padded seats, and a beautiful garden. To get familiar with the centre before you arrive, you may like to watch the centre’s walkthrough video. Rangiora Venue: Our Rangiora in-person meetings are currently held at The Skurr Centre. Address: 156 Ashley Street, Rangiora Showgrounds, Rangiora This venue has onsite carparks. Our Meeting Venues: Timaru Venue: Our Timaru in-person meetings are held at the Timaru Library, Community Room. Address: 56 Sophia St, Timaru. Hokitika Venue: Our Hokitka in-person meetings are held at WestREAP. Address: 72 Tudor Street, Hokitika. Other Venues: We use other venues from time to time. Please check the event listing to confirm venue location. Join us: To receive support and /or information about ME/CFS from us on a regular basis, please sign up as a member (it is free). Please complete our membership form, either: Join online or Print PDF and post